Patch & Nick


The Amazing Nick Snow

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Patch Adams, M.D. and Nick at Camp Winnarainbow photo by Becky Reetz 

Nick Snow was diagnosed January 1996 at the tender age of 6 with Neuroblastoma, a rare and deadly childhood cancer. He underwent 84 months of treatment (chemotherapies, surgeries, 4 types of radiation, a bone marrow transplant, many experimental therapies), and finally reached remission December 2002. Sadly, after more than three years of being cancer-free, he died April 2, 2006 from an infection. He remains a beacon of hope to all who are battling this disease.

Nick's 2005 Christmas letter to us
Dear Mom + Dad,
Hey I wanted to let you guys know how much I love you. I canít even put it into words how much I owe you and thank you both for being there for me through all of this. I still have grief and anger about putting our family through this. Yes,  I have thought about ending my life so our family does not have to live with the deep scars that this disease has brought us.

I canít thank you guys enough for having faith and belief in me, and keeping that hope, knowing that I could beat Neuroblastoma and prove to the doctors that it is beatable. And if it werenít for you guys, I would not be here today. Now knowing what we can get through together, I hope we can work out our pain and guilt that we have. I believe we can heal our scars if we come together as a family.

We can accomplish anything!

Every Christmas is special to me in its own way. I donít know how many times we have heard the doctors say I would not make it to the next Christmas, so itís just a great feeling to be alive and be able to enjoy Christmas with you both.

I donít think I have brought this up, but I have a lot of depression about how Tyler had to grow up when I was sick. He had to do a lot by himself since you guys were with me in the hospital. Also, I donít think he realizes how much I love him and from the bottom of my heart, I thank him for being such an amazing brother that I can look up to.

Well Mom + Dad, I love you guys so much! I hope we can start putting some of this medical stuff behind us and move on, and I hope Iíll see you next Christmas.

Love you lots!

Merry Christmas.

Love from,


Nick with the dolphin in Hawaii - January 2006


Nick's Drumming CD
click on picture to hear track 12
photo by Kristen Oliver

We sold Nick's drumming CD, and raised $2785.45 for
Dr. Pat Reynolds' Neuroblastoma research.

Click on the picture to see pictures from
Nick's Celebration of Life Party.

Locks of Love and Nick Snow's mom

Nick Snow is on YouTube!
video time = 10 minutes, 10 seconds

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click here for The Union newspaper article

Nick's Dream: A New Pediatric Palliative Care Benefit for Children

Nick Snow was a Nevada Union High School Sophomore who saw first-hand that the federal hospice rules do not work for children. In 2003, he went to Washington D.C. to ask congress to change the rules, and at that time, also started working with the Childrenís Hospice and Palliative Care Coalition (CHPCC), and Governor Schwarzenegger here in California.

Very few children receive hospice care because in order to qualify for hospice care under the current system their parents and their doctor must state that the child has likely less than six months to live and the child must stop all treatment intended to cure their disease, or prolong their life.

These eligibility requirements take an ďall or nothingĒ approach either - ďwe are trying for a cureĒ or ďwe are managing pain,Ē stated Shannon Snow, Nickís mom.

It is the position of experts, including the Institute of Medicine and the American Academy of Pediatrics, that it is inhumane to ask a parent to give up hope for curing their child in order to receive the compassionate family support services provided by a hospice team.

Under The Nick Snow Hospice and Palliative Care Act (AB-1745), California was authorized to submit a federal waiver which will enable children to receive potentially curative treatments, as well as comfort care and compassionate family support services provided by a hospice team.

The first five of thirteen pilot programs will be launched in Alameda, Monterey, San Diego, Santa Clara and Santa Cruz counties. These will be followed by Humboldt, Marin, Orange, Sacramento, San Francisco, and Sonoma counties in 2010, and Fresno and Los Angeles counties in 2011.


Senator Barbara Boxer and Nick Snow



                                                                                Nick's mom & dad  photo by Becky Reetz

click here to e-mail Nick's Parents



Nick's Bill was signed into law by Governor Arnold Schwarzenegger.
Shannon Snow (Mom) at the podium

Click on the picture to see the video. Fast forward to 14:45 to see my speech./font> 

So I want to turn this mike over now to Nick Snowís mother, Shannon Snow. She is the one who has held this vision, and this was Nickís vision. Right before he died he made a commitment that this would happen. And so I want to give you Shannon Snow, Nickís mother. (Applause)


Thank you all. Iím Nick Snowís mom. Nick spent seven years being terminal, and he saw firsthand how the system was failing him and all of the other children. And he met Lori Butterworth at a party and said, ďLetís do something. Whatís happening right now isnít working for children. Itís not working for me. We have to change it.Ē And so we are.

So thank you, dear Governor, for allowing this to happen today. This is a great day. Thank you. (Applause)

Nick and brother, Tyler.